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Where are you now? How are you doing? Are you okay? I hope so. I have been praying like 2 hours a day and it is helping so much. I hope you will add it to all the great things you are doing to feel better!
Xanax is not safer than street drugs, horribly addictive. Im not saying don’t take it, just that you should take as little as possible (like you are already doing).
Hey guys….PLEASE register at the Oprah Winfrey website and let her know how much you would like to see her do a show on Lyme disease. Dr. Oz thinks the “UNDER OUR SKIN” documentary is wonderful but a show about Lyme won’t be done unless she sees lots of interest. Request that LLMDS and patients be the guests so that we can be heard. Also, Daryl Hall would make a great guest. OPRAH needs to hear about YOUR experience with Lyme disease. WE ARE ALL IN THIS TOGETHER !
God Bless,
Elaine
The movie has brought much needed awareness, however, why don’t you post a list of petitions,a list of political representatives that we can contact. Put the links on your page; this will? make it easier for those w ho barely have the energy to move. Please
Google…..”Low Dose Naltrexone Homepage.” And also here on You tube…”Controlling Lyme Disease,” and see the LDN videos by “TropicalDawg” here as well. I have been using LDN, for just over a week now, and feel the need to pass the buzz. This is a drug that helps with the immune system, inflammation and endorphins. Eat as if you had a yeast problem, because Lyme loves what yeast loves. And no sugars of any kind…”Including Fruit!”
I read a book years ago, called “Sugar Blues” by William Dufty. An absolute read. He states that during the Bubonic Plague, the rich who could afford sugars, were dropping like flies, the poor country folk who could not, faired well.
People, “Chemtrails,” are killing the biological nutrients, supporting all plant life. What do you think that is doing to our immune systems, and that of bees? I have saved a sample of snow, from a storm in late December, that left my hair sticky and gluey feeling. I showered if out immediately. Does anyone know where I can get it tested? In need of one who is trustworthy.
hang in there, everything will be o.k. Have you seen the M.M.S. studies by Jim Humble. Ya might wanna check it out. There are a few people like you here on you tube that are already using it. Check them out, Please.
mclovinowns121, If you watch some of the lyme videos and read the comments, you will see that it CAN be more serious than you want to know, but it doesn’t NEED to be…treat it properly early on, and you will be okay. In other words, your mom needs to make sure that you are seen by a lyme-literate medical doctor ASAP. For real, make sure it happens. Your mom is free to e-mail me too.
It was great to hear from you Jamie! That’s the attitude! I know how tough it can be. I have a wife and 2 kids with Lyme and still our patience with eachother is stressed and the Lyme emotional effects just aggrevates it. This kind of new friend support is so important. I hope you feel you can connect back with me whenever you need it. I’m in one of the epicenters in Westchester, NY so I’m not alone and neither are you. I need to get a camera and follow your brave example. You’re great, be well!
Hi Jenn,
Wow, it sounds like we have alot in common. I really wish you the very best. I am just beginning treatment for real this time. It has been a long road but I super positive and keep a good outlook. Take care.Jamie:)
Hi D,
Well, it sounds like you caught it early which is a really good sign. Make sure you do abx for a little longer than that. I am very serious. Your mom can e-mail me if she wants. I just know that most LLMDs would want you to do a little longer just in case. Don’t want to take any risks. Good for you for advocating for your health at such a young age. Take care and I am sure you will bounce right back. The younger you are they say it is easier to recover. Jamie:)
hey im only 12 years old and i just tested positive for lyme disease but for me it only took one blood test at the doctors and acording to my mom i will be on anti biotics for 3 weeks and its nothing serious but i think my mom is trying not to scare me cuz i worry about health. My symtoms were mainly just contanst head aches and problems memorizing facts and the one day of soarness. so is it serious or just and easy cure? i also wish you the best of luck on getting better =D
Hi Jamie, my name is Dave; I’ve lived with Lyme for 16 years now. I was successful at keeping it in control until 2 years ago when it broke out of control and took me out of my profession and the life I knew. You have a great spirit, the only advice I can give is keep on fighting and make sure your Doctor is really locked into the associations that provide updated protocal which should be shared with you. Hang in there!
Hi Jamie,
My name is Carol and I recently found out I have chronic lyme as well. I fell terribly ill back in February (prior to diagnosis). They ran all kinds of test. At one point as it was going thru my body and attacking different parts I got to a point where it felt my lungs were too tired & weak to keep expanding and contracting. I ended up in the hospital. I completely relate to losing who you were. I find the brain/cognative part the worst & scariest. I hope you are feeling better
Hey Jamie,my name is Jennifer from NYC,I been sick with lyne since May 2006,I started with an iv picline,and then abx,I havent been off in 2 years.I am a mommy Makayla 8 aand Aiden 3,My mother just passed away June 16,due 2 cancer.She was my voice my rt arm,When every one said i was crazy,she new somthing was so wrong.I have good days and bad days,It gets so hard taking care of the kids and fighting this disease..Anyways just wanted to say HI,hope ur feeling better..JENN
Hi Jamie,
I am just startingthis whole lyme saga.
I have been sick for almost 7 months with no diagnosis.
I am now starting antibiotics for lyme.
I wanted to thank you for your videos I have really enjoyed watching and learning more about Lyme.
I am hoping to get better soon myself.
I was wondering where you live,and what doctor you see?
I trying to get into see the LLMD.
Any advice at all would be greatly appreciated.
thanks,
Tracey
There will come a day when this will all be behind you and you will be back doing all the things you love to do. I feel like were getting closer and closer to a protocol that will work for any Lymer at any stage of the disease to put it into remission irregardless of how many co-infections one might have. Keep watching and stay tune to the LymeKnights Website and Research. It’s all about sharinghealth. com municating openly and truthfully within the Lyme Community!
Heya Jamie! So good to see you again. Wow, for not having a watch you sure did do that clip in 10 minutes to the second! Glad that you are all settled into your new home and that things are going well with your fella. Adversity can often bring out the best part of folks. I am sorry that I have not yet gotten a clip on here. Spent some money on a cheapo camera, and it sucks. You can’t hear me talk. I’ll try another maybe. Was really down for a bit but I’m picking back up.
More to say: talk soon.
April 16th, 2010 at 3:03 pm
Where are you now? How are you doing? Are you okay? I hope so. I have been praying like 2 hours a day and it is helping so much. I hope you will add it to all the great things you are doing to feel better!
April 16th, 2010 at 3:13 pm
“herx”- it stands for the herxheimer reaction which can happen when you take antibiotics. it is like getting worse before you feel better
April 16th, 2010 at 4:08 pm
What does “hurks” mean? I don;t know how its spelled so I can’t google it.
April 16th, 2010 at 4:38 pm
Xanax is not safer than street drugs, horribly addictive. Im not saying don’t take it, just that you should take as little as possible (like you are already doing).
good luck to you,
chris
April 16th, 2010 at 5:31 pm
best of luck to you I know it’s hard,
chris
April 16th, 2010 at 5:43 pm
Hey guys….PLEASE register at the Oprah Winfrey website and let her know how much you would like to see her do a show on Lyme disease. Dr. Oz thinks the “UNDER OUR SKIN” documentary is wonderful but a show about Lyme won’t be done unless she sees lots of interest. Request that LLMDS and patients be the guests so that we can be heard. Also, Daryl Hall would make a great guest. OPRAH needs to hear about YOUR experience with Lyme disease. WE ARE ALL IN THIS TOGETHER !
God Bless,
Elaine
April 16th, 2010 at 6:07 pm
“melikerns” idea to openeyepictures
The movie has brought much needed awareness, however, why don’t you post a list of petitions,a list of political representatives that we can contact. Put the links on your page; this will? make it easier for those w ho barely have the energy to move. Please
April 16th, 2010 at 6:50 pm
Google…..”Low Dose Naltrexone Homepage.” And also here on You tube…”Controlling Lyme Disease,” and see the LDN videos by “TropicalDawg” here as well. I have been using LDN, for just over a week now, and feel the need to pass the buzz. This is a drug that helps with the immune system, inflammation and endorphins. Eat as if you had a yeast problem, because Lyme loves what yeast loves. And no sugars of any kind…”Including Fruit!”
April 16th, 2010 at 7:39 pm
I read a book years ago, called “Sugar Blues” by William Dufty. An absolute read. He states that during the Bubonic Plague, the rich who could afford sugars, were dropping like flies, the poor country folk who could not, faired well.
April 16th, 2010 at 8:01 pm
People, “Chemtrails,” are killing the biological nutrients, supporting all plant life. What do you think that is doing to our immune systems, and that of bees? I have saved a sample of snow, from a storm in late December, that left my hair sticky and gluey feeling. I showered if out immediately. Does anyone know where I can get it tested? In need of one who is trustworthy.
April 16th, 2010 at 8:01 pm
hang in there, everything will be o.k. Have you seen the M.M.S. studies by Jim Humble. Ya might wanna check it out. There are a few people like you here on you tube that are already using it. Check them out, Please.
April 16th, 2010 at 8:32 pm
mclovinowns121, If you watch some of the lyme videos and read the comments, you will see that it CAN be more serious than you want to know, but it doesn’t NEED to be…treat it properly early on, and you will be okay. In other words, your mom needs to make sure that you are seen by a lyme-literate medical doctor ASAP. For real, make sure it happens. Your mom is free to e-mail me too.
April 16th, 2010 at 9:16 pm
It was great to hear from you Jamie! That’s the attitude! I know how tough it can be. I have a wife and 2 kids with Lyme and still our patience with eachother is stressed and the Lyme emotional effects just aggrevates it. This kind of new friend support is so important. I hope you feel you can connect back with me whenever you need it. I’m in one of the epicenters in Westchester, NY so I’m not alone and neither are you. I need to get a camera and follow your brave example. You’re great, be well!
April 16th, 2010 at 9:30 pm
Hi Jenn,
Wow, it sounds like we have alot in common. I really wish you the very best. I am just beginning treatment for real this time. It has been a long road but I super positive and keep a good outlook. Take care.Jamie:)
April 16th, 2010 at 9:48 pm
Thanks Dave for your thoughts. I am going to win this fight. I am not a quitter. I hope you are feeling better too. Jamie:)
April 16th, 2010 at 10:02 pm
Hi D,
Well, it sounds like you caught it early which is a really good sign. Make sure you do abx for a little longer than that. I am very serious. Your mom can e-mail me if she wants. I just know that most LLMDs would want you to do a little longer just in case. Don’t want to take any risks. Good for you for advocating for your health at such a young age. Take care and I am sure you will bounce right back. The younger you are they say it is easier to recover. Jamie:)
April 16th, 2010 at 10:52 pm
hey im only 12 years old and i just tested positive for lyme disease
but for me it only took one blood test at the doctors and acording to my mom i will be on anti biotics for 3 weeks and its nothing serious but i think my mom is trying not to scare me cuz i worry about health. My symtoms were mainly just contanst head aches and problems memorizing facts and the one day of soarness. so is it serious or just and easy cure? i also wish you the best of luck on getting better =D
April 16th, 2010 at 11:16 pm
Hi Jamie, my name is Dave; I’ve lived with Lyme for 16 years now. I was successful at keeping it in control until 2 years ago when it broke out of control and took me out of my profession and the life I knew. You have a great spirit, the only advice I can give is keep on fighting and make sure your Doctor is really locked into the associations that provide updated protocal which should be shared with you. Hang in there!
April 16th, 2010 at 11:30 pm
Hi Jamie,
My name is Carol and I recently found out I have chronic lyme as well. I fell terribly ill back in February (prior to diagnosis). They ran all kinds of test. At one point as it was going thru my body and attacking different parts I got to a point where it felt my lungs were too tired & weak to keep expanding and contracting. I ended up in the hospital. I completely relate to losing who you were. I find the brain/cognative part the worst & scariest. I hope you are feeling better
April 17th, 2010 at 12:21 am
my name is terra im 21 and i have been fighting lyme for years i wish u the best of luck this is a horrable disease and i wish u nothing but the best
April 17th, 2010 at 12:26 am
Hey Jamie,my name is Jennifer from NYC,I been sick with lyne since May 2006,I started with an iv picline,and then abx,I havent been off in 2 years.I am a mommy Makayla 8 aand Aiden 3,My mother just passed away June 16,due 2 cancer.She was my voice my rt arm,When every one said i was crazy,she new somthing was so wrong.I have good days and bad days,It gets so hard taking care of the kids and fighting this disease..Anyways just wanted to say HI,hope ur feeling better..JENN
April 17th, 2010 at 12:57 am
Hi,
Thanks, I really feel that I am dealing with Bartonella too. A friend of mine says he really feels that this is the problem too.
April 17th, 2010 at 12:59 am
Hi Jamie,
I am just startingthis whole lyme saga.
I have been sick for almost 7 months with no diagnosis.
I am now starting antibiotics for lyme.
I wanted to thank you for your videos I have really enjoyed watching and learning more about Lyme.
I am hoping to get better soon myself.
I was wondering where you live,and what doctor you see?
I trying to get into see the LLMD.
Any advice at all would be greatly appreciated.
thanks,
Tracey
April 17th, 2010 at 1:13 am
There will come a day when this will all be behind you and you will be back doing all the things you love to do. I feel like were getting closer and closer to a protocol that will work for any Lymer at any stage of the disease to put it into remission irregardless of how many co-infections one might have. Keep watching and stay tune to the LymeKnights Website and Research. It’s all about sharinghealth. com municating openly and truthfully within the Lyme Community!
April 17th, 2010 at 1:23 am
Heya Jamie! So good to see you again. Wow, for not having a watch you sure did do that clip in 10 minutes to the second! Glad that you are all settled into your new home and that things are going well with your fella. Adversity can often bring out the best part of folks. I am sorry that I have not yet gotten a clip on here. Spent some money on a cheapo camera, and it sucks. You can’t hear me talk. I’ll try another maybe. Was really down for a bit but I’m picking back up.
More to say: talk soon.